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78 pages 2 hours read

Between Two Kingdoms

Nonfiction | Autobiography / Memoir | Adult | Published in 2021

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Part 1, Chapters 9-12Chapter Summaries & Analyses

Part 1, Chapter 9 Summary: “Bubble Girl”

Suleika arrives at the hospital for her first chemotherapy session. Her mother gives her a charm necklace, and Will gives her a journal. The doctors insert a catheter into her chest for the chemotherapy drugs. When Suleika sees the catheter on her body, she vomits. At her room, Suleika notices that her name has been misspelled: “the sign outside my hospital room read S. JAQUAD—with a q where the o should be” (67).

Two nurses, one of whom introduces herself as Younique, give her antinausea medication through her IV. Afterward, Will and Suleika’s parents sit with her. She eventually tells them to go home with a cheerful wave, but bravery disappears when they leave. Suleika wakes up to her roommate moaning in the middle of the night. Afraid, she calls Will. He arrives and they sleep together in the hospital bed.

Suleika meets her roommate, Estelle. Estelle tells her to walk around while she still can, and Suleika explores the unit and meets Dennis and Yehya, who are also undergoing treatments for cancer. Yehya is from North Africa.

After a week, Suleika’s parents still visit every day. She plays Scrabble with Will. Other friends come by too. She thinks that she has avoided the worst side effects and dreams of getting an apartment with Will after the treatments. The doctors move her to an isolation room: “Anyone who entered my room, which I dubbed ‘the Bubble,’ had to wear the mandatory protective armor—face mask, gloves, surgical gown” (74). The chemotherapy’s side effects intensify, and her hair falls out. The isolation feels unbearable, and Suleika sneaks out of her room. In the cafeteria, people bump into her, and her anxiety mounts. Suleika returns to her room where she feels safe.

After five weeks, a team of doctors says that her blast numbers have more than doubled and recommend a trial drug. With the urgency of her condition, she has little time to decide, and she consents to be in the trial. Suleika and several other patients get permission to watch the Fourth of July fireworks from the window. Will, Suleika, and Dennis—Yehya is too tired to go—watch the show. Instead of crying at watching from the hospital, she laughs at the absurdity of the scene, and everyone else laughs with her.

Part 1, Chapter 10 Summary: “Stop-Time”

After two months of isolation, Suleika stops treatments and returns to Saratoga Springs to gain strength before the clinical trial. She enjoys the freedom of being able to go outside but often feels too unwell to leave the house. Will’s parents visit and Suleika meets them for the first time. She worries that she won’t live up to their expectations. They assure her that Will is a better man since meeting her. On a walk into town, Suleika lags and drips with sweat. She tells everyone she feels fine, but she is feverish and too embarrassed to explain where she hurts, her vulva, hoping the pain goes away.

Several days later Anne and Will drive her to the emergency room. They wait in the reception area, and then her mother tells the receptionist, “My daughter has leukemia and a very high fever. [...] She is severely immunocompromised and if you make her wait any longer you will have blood on your hands” (85). Suleika notices that Will seems overwhelmed. Anne suggests that Will take a break. He agrees and goes to meet friends for a drink.

The next scenes come in fragments as she goes in and out of consciousness, fighting an infection that possibly turned into sepsis. In the memories, she is in the geriatric unit, feverish and disoriented. In the final memory, Dr. Holland tells Anne to call her husband to the hospital and says, “This could go either way” (88).

Suleika wakes up, relieved to be alive. Will comes to sleep next to her in a recliner. Jaouad writes, “Tonight, like so many other nights, he would sacrifice comfort for closeness” (88). Suleika suggests that they get married. Will agrees immediately, and they stay up planning a small wedding. Suleika moves to the oncology unit and tells Younique she and Will plan to marry in the next few weeks. Younique updates her on Yehya and Dennis. Both died in her absence: “Younique rubbed my back as I tried to process the news. All I could think was, I’m next” (89).

Part 1, Chapter 11 Summary: “Stuck”

Suleika plans to begin the outpatient clinical trial. She tries to focus on the present and survival, but all she can think of is the grief Will and her family will feel if she doesn’t live. She sees that Will needs to live his own life: “The land of the sick was no place for anyone to live 24/7; I would never have wished that on my worst enemy” (92). She proposes that he get a job. Will agrees and adds, “But I don’t want you to feel like you’re alone in this” (92). Suleika tells him that she’s not going to be better any time soon and helps him prepare his resume. He looks for jobs in Saratoga, but not finding any, he eventually gets a job as an editor in New York.

Will heads to the city for the workweek, and after dropping him off at the train station, Suleika retreats to her room. She writes, “The world is moving forward and I am stuck” (93). She wants to find a productive way to spend her time, even taking the GRE, but cancer keeps her in bed. Even if she gets into graduate school, she won’t be able to attend because of her treatments.

Suleika questions whether the clinical trial is worth the side effects that frequently send her to the hospital: colitis, sepsis, blisters in her mouth, and constant pain. During one hospital stay, she tells the medical staff she is getting married. A social worker comes later and explains to Suleika and her parents that, since she is on her father’s health insurance, marriage could jeopardize her bone marrow transplant. They decide to postpone the wedding, “joining countless other plans and goals and projects that had been relegated to purgatory until further notice” (96). Suleika observes that the sicker she becomes, the harder it is to stay the “good-natured patient.” She begins to resent Will and everyone else for being able to have agency over their lives.

Part 1, Chapter 12 Summary: “Clinical Trial Blues”

Suleika’s parents believe that she is depressed. She sleeps, experiences nausea, and watches Grey’s Anatomy. She finds comfort in the show’s hospital scenes because they numb her to her situation. The movie A Little Bit of Heaven brings her comfort, too. It follows a young woman who gets colon cancer, falls in love with her oncologist, and, in the end, dies. Suleika cries for hours every time she watches it.

Her parents want her to see friends or go to a support group, so Suleika reaches out to a friend named Molly. They decide to meet at the mall, and Suleika realizes that none of her clothes fit any longer. She puts on makeup for the first time in months.

Anne reminds her that she needs her chemotherapy injections before she leaves. Suleika dreads this routine and the pain it incites, and she finds it hard to be thankful for her mother’s willingness to give her the injections. Jaouad writes, “[T]he metallic tang of fear coat[s] my tongue at the sight of the needles” (99).

Suleika’s father drives her to the mall to meet her friend. Her father offers to walk her inside, but she dismisses him and feels everyone treats her like a child. Molly gives her a bag of marijuana before they go to a movie, and Suleika realizes that she forgot her anti-nausea medication. She throws up at the smell of the popcorn, and strangers comment on how wasted she is. She goes back to her seat and pretends that everything is normal. Molly drives her home, and when she arrives, Suleika notices how exhausted her dad looks. She gives him the marijuana saying, “You look like you could use it more than me” (103).

Part 1, Chapters 9-12 Analysis

Suleika encounters her new, altered body and identity in Chapter 9. She gets a catheter for the chemotherapy drugs and when she gets to her room, she sees her name misspelled: “On some level, I was starting to realize that the life I’d had before was shattered—the person I’d been, buried. I would never be the same” (67). This symbolizes for Jaouad how Suleika now belonged to the land of the sick with a new name, and a new body. Even though Suleika has few side effects the first week, Estelle and Dennis foreshadow the difficult road ahead, telling her to walk around while she can.

When she is in the hospital for her first chemotherapy treatments, Suleika and Yehya find commonality in their shared backgrounds. When she returns, Yehya has died. Younique rubs her back as she takes in the news. All I could think was, I’m next” (89). During this phase of her treatment, Suleika does not talk about the possibility of death with her friends or family, but television shows like Grey’s Anatomy and the movie A Little Bit of Heaven give Suleika space “to face the one topic my friends and family refused to discuss, even though it was on everyone’s mind: the possibility that I could die, and soon” (98). Her body is visibly changing. She loses all her hair during chemotherapy, and she can no longer fit into her old clothes, reflecting how different she is from the person before her diagnosis.

She tries to be strong and persevere, to set goals and dream, but her leukemia demands that she live from treatment to treatment and respond to the daily needs of her body. When she first checks in to the hospital in Chapter 9, Suleika wants to assure her parents and Will that she will be okay by telling them to leave, but when they do, she realizes how afraid she is. Her late-night phone call to Will demonstrates that she depends on him most. When Suleika returns to Saratoga, Will’s days are governed by Suleika’s body, and he embraces this role. When Will and Anne take Suleika to the emergency room when she has a fever, Will’s character shows the first signs of being overwhelmed. Their future as a couple is now shrouded in if of illness and death more so than the possibilities of their future and dreams. In this spirit, Suleika and Will decide to get married. Acting against the presence of mortality, they throw themselves into living.

Chemotherapy depletes Suleika’s immune system and requires following strict rules. The isolation in her “Bubble” walls her off from healthy people. She feels cut off from the outside world because of the restrictions placed on her and those who visit her. The restrictions separate her also from friends, like Yehya, Dennis, and Estell who are in the hospital. Outside visitors do come to visit her, but it becomes more difficult for Suleika to know how to relate to the mundane stress and routines of those who visit. When she, Dennis, and Will watch the Fourth of July fireworks, the people below seem like they are in another world to Suleika, highlighting the separation she must endure to heal.

Suleika wants certainty and a proven treatment regimen: “I craved hard facts, statistics, and proof that my treatments were worth the havoc they had wreaked on my mental and physical health […] I had no desire to be a guinea pig. I wanted a cure” (78). The perpetual uncertainty carries over into her relationship with Will and her professional goals. When the social worker tells Suleika and Will that their marriage may jeopardize Suleika’s ability to get a blood marrow transplant, Suleika responds by searching for a professional or educational goal or pursuit. Suleika has always filled her journal with hopes and dreams, but now she doesn’t know if she will survive. She feels stuck in the present uncertainty and cycle of appointments and treatments. The effort to get into graduate school and the realization that it would be impossible to complete the work embody the morass of illness.

With each dream she puts off, it becomes increasingly difficult to contain her depression, anger, and resentment. Jaouad notes how the disease splits her into anger and her love, writing, “Finding the silver lining felt like part of the punishment” (100). She points out that she isn’t the only one whose life has been “interrupted by illness” (100); everyone in her family is mired in the in-between of leukemia. Suleika notices how the disease burdens Will and her parents. She associates her mother with the chemotherapy injections and feels that both her father and mother treat her like a child. At the end of Chapter 12, Suleika extends compassion to her father, showing the complexity of her situation and character. She comes home from the movies with Molly and sees her dad’s face “sallow and sagging in new places” (103). She gives him the bag of marijuana that Molly had given her, a sign of her character’s growing empathy and awareness of the illness’s impact.

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